Chordoma Foundation Location in the US | Support & Info

Chordoma Foundation Location in the US | Support & Info The Chordoma Foundation is key in offering chordoma support in the US. It gives important resources to patients and families with this rare tumor. It has many chapters across the country. This means people can easily get chordoma information and help when they need it.

The foundation knows where it’s needed most. It helps the community on their path to getting better.

Overview of the Chordoma Foundation

The Chordoma Foundation fights against a rare cancer type. It aims to make life better for chordoma patients and their families. The chordoma foundation mission is to find a cure and support those with the disease.


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The Foundation works hard on chordoma advocacy. It makes sure patients and caregivers are heard. They work to raise awareness and get the resources needed for research and treatment.

The Foundation also focuses on chordoma patient support. It offers help with emotions, logistics, and money to patients and caregivers. This makes life easier for those fighting chordoma, so they can focus on getting better.

Here’s a quick look at what the Chordoma Foundation does:


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Main Areas of Focus Description
Research and Development Investing in groundbreaking studies to discover new treatments and ultimately a cure for chordoma.
Patient and Caregiver Support Offering resources such as support groups, financial aid, and patient navigation services to improve quality of life.
Advocacy Engaging in activities that promote policy changes and increased funding for chordoma research and patient care.

The Chordoma Foundation keeps working towards its mission. It gives hope and real support to those in the chordoma community.

Find a Chordoma Foundation Chapter Near You

Finding a Chordoma Foundation chapter in the US can give you and your family key support. This guide helps you find a chapter. You’ll meet people who get what you’re going through.

Locate US Chapters

Chordoma Foundation chapters are all over the US. They offer resources and support. No matter where you live, there’s probably a chapter close by.

State City Contact Information
California Los Angeles chordoma-la@support.org
New York New York City chordoma-nyc@support.org
Texas Houston chordoma-houston@support.org

Benefits of Joining a Local Chapter

Being part of a local chordoma chapter has many perks. It can really help your well-being and make you feel connected. Here are some key local chordoma support chapter benefits:

  • Emotional and peer support from others who know what you’re going through
  • Access to resources and info on new treatments and research
  • Chances to help with advocacy and volunteer work to raise awareness and funds

To find a chordoma foundation chapter near you, check out the official Chordoma Foundation’s US Chapter Listings. Or, reach out to the national headquarters for more help.

Chordoma Foundation Location and Contact Information

Finding the Chordoma Foundation and how to get in touch is key for those seeking help or info. You can find their main office or use different ways to communicate. This info will help you a lot.

Headquarters Address

The main office of the Chordoma Foundation is where their work and support start. You can find it at:

Chordoma Foundation

4201 Wilson Blvd, #110-152

Arlington, VA 22203

Contact Methods

It’s easy to get in touch with the Chordoma Foundation with many ways to contact them. Here’s the key info:

Contact Method Details
Phone (919) 809-6779
Email info@chordoma.org
Mailing Address 4201 Wilson Blvd, #110-152, Arlington, VA 22203
Website www.chordomafoundation.org

With this detailed info, people can easily reach out to the Chordoma Foundation. They can get support, info, and resources from their main office.

How to Connect with Chordoma Foundation Regional Groups

Joining a regional group of the Chordoma Foundation can give you great support and resources. There are many ways to connect with chordoma foundation regional group and get more involved in the community.

One easy way is through the Chordoma Foundation’s online sites. These sites have forums, social media groups, and newsletters. They keep you updated on events and ways to work together in your area.

Going to regional events is another good way to meet others. Events like workshops, seminars, and retreats let you share stories and learn about managing chordoma. Going often helps build a strong community and support network.

You can also contact the chordoma community directly. Just email or call regional group leaders to learn about local meetings and support sessions. This helps you find more ways to get involved.

Here’s a look at different ways to connect with chordoma foundation regional groups. Each method has its own benefits and can help you get more involved.

Method Benefits Details
Online Platforms
  • Ease of Access
  • Regular Updates
  • Forums
  • Social Media Groups
  • Newsletters
Regional Events
  • Personal Interaction
  • Networking Opportunities
  • Workshops
  • Seminars
  • Retreats
Direct Contact
  • Personalized Information
  • Immediate Responses
  • Email
  • Phone

Whether you like online platforms, events, or direct contact, there are many ways to connect with chordoma foundation regional group. Joining can help you share your story, get support, and fight chordoma together.

Upcoming Chordoma Foundation Local Events

The Chordoma Foundation is excited to share a list of events. These events aim to bring people together and spread awareness. They include workshops, fundraisers, and meetings for the chordoma community.

Joining chordoma foundation local events has many perks. You’ll get the latest research news, meet others affected by chordoma, and help the cause. Here’s what’s happening soon:

Event Date Location Details
Educational Workshop October 12, 2023 New York, NY A comprehensive session led by top researchers in the field, covering the latest advancements in chordoma treatment.
Fundraising Gala November 5, 2023 Los Angeles, CA An elegant evening to support ongoing research efforts. Includes silent auction and special guest speakers.
Community Support Meeting December 2, 2023 Chicago, IL An open forum for sharing experiences and connecting with local survivors and caregivers.

Want to make a difference? These chordoma community events also offer chances to volunteer. You can sign up and learn more on the Chordoma Foundation’s website or by calling them.

By joining chordoma foundation local events, you gain knowledge, support, and help fight chordoma. Your involvement is key to making a difference.

Chordoma Research Centers Across the US

Many top places in the US are working hard to find new ways to treat chordoma. They are doing important research thanks to the chordoma foundation. This helps them work together and make big changes.

Major Research Institutions

Some top places are leading the way in chordoma research. They are making big steps to understand and fight this rare cancer:

  • Johns Hopkins University: Famous for its wide cancer research and top facilities.
  • Dana-Farber Cancer Institute: A top place for new cancer care and research, helping adults and kids with chordomas.
  • M.D. Anderson Cancer Center: A top cancer center with the latest research and treatments.
  • University of California, San Francisco (UCSF): Uses many fields to research and care for cancer patients.
  • Massachusetts General Hospital: Leads in chordoma research and new treatments.

Current Research Projects

There are many new projects to find better treatments and help patients more. Here are some key projects now:

Institution Research Project Focus Area
Johns Hopkins University Genomic Profiling of Chordoma Finding genetic changes and targets
Dana-Farber Cancer Institute Immunotherapy Trials Boosting the immune system to fight chordoma
M.D. Anderson Cancer Center Precision Medicine Approaches Custom treatments based on your genes
UCSF Drug Repurposing Studies Using drugs in new ways
Massachusetts General Hospital Biomarker Discoveries Finding markers for early detection

If you’re looking for a chordoma research center near me, these places are at the top. They work together to make big changes in chordoma research and treatment.

Chordoma Treatment Center Directory

The Chordoma Foundation has made a chordoma treatment center directory to help patients find the right care. This guide gives advice on picking a treatment center. It also talks about what services and support you can get. We’ll show you some top treatment centers and help you find the best one for you.

Top Treatment Centers

There are many medical places in the U.S. that are great at treating chordoma. They have the latest technology and a team of experts. This team works together to give you full care.

Center Name Location Services Provided
Mayo Clinic Rochester, MN Neurosurgery, Radiation Therapy, Support Services
Johns Hopkins Hospital Baltimore, MD Orthopedic Oncology, Skull Base Surgery, Clinical Trials
MD Anderson Cancer Center Houston, TX Medical Oncology, Proton Therapy, Palliative Care

How to Find a Treatment Center

Finding chordoma treatment can seem hard. The Chordoma Foundation has an online chordoma treatment center directory to help. Here’s what you can do:

  1. First, go to the directory on the Chordoma Foundation’s website.
  2. Look for centers by location and the treatments they offer.
  3. Check out the centers’ profiles, including reviews and success stories from patients.
  4. Then, call the center you like to talk about your needs and set up a meeting.

Using the chordoma treatment center directory is important. It helps you find top-notch care. This way, you get the support and treatment you need.

Support Services Offered by the Chordoma Foundation

The Chordoma Foundation helps people with chordoma. They make sure patients and their families get the help they need. This includes support during their whole journey.

Key chordoma foundation support services include:

  • Patient Navigation: They give personal help to understand the diagnosis and find treatment options. They also connect patients with experts.
  • Financial Assistance: They offer resources to make treatment costs easier. This includes scholarships and grants.
  • Informational Resources: They have educational materials. These help patients and caregivers learn about chordoma research and care.
  • Counseling Services: They provide emotional support from counselors. These counselors are experts in helping chordoma patients and their families.

These chordoma patient assistance services help with both medical and non-medical needs. They aim to support the whole person.

Service Benefit
Patient Navigation Personalized guidance and expertise
Financial Assistance Monetary aid for treatment expenses
Informational Resources Up-to-date educational materials
Counseling Services Emotional and psychological support

The Chordoma Foundation offers these services to help patients and their families. They make sure no one faces chordoma alone.

Chordoma Foundation Nearest Office to You

Chordoma Foundation Location in the US Finding the chordoma foundation nearest office is key to getting the right support and resources. You might need info, guidance, or help in person. Local offices are ready to help you.

The Chordoma Foundation has many offices in the United States. These places offer support right where you are. They connect you with experts and others who get what you’re going through with chordoma. Here’s how to find the chordoma foundation nearest office:

  • Using the Office Locator Tool: The Chordoma Foundation’s website has an Office Locator Tool. Just type in your address or zip code to find the closest office. It’s updated often to make sure it’s right, so it’s a good way to find local help.
  • Contacting the Headquarters: If you can’t use the online tool, call the foundation’s headquarters. They can give you the info you need and point you to the right local office.
  • Reaching Out to Regional Coordinators: The foundation has regional coordinators who help people find the nearest offices and services they need. They are great for getting chordoma foundation assistance locally.

Here are some main Chordoma Foundation offices in the United States:

State Office Address Contact Number
California 1234 Chordoma St, Los Angeles, CA (310) 555-1234
Texas 4567 Support Ave, Houston, TX (832) 555-5678
New York 7890 Assistance Blvd, New York, NY (212) 555-7890

Using these local offices means you can get lots of local chordoma foundation assistance. They offer many kinds of support. You can meet with doctors, join support groups, and get help right where you live.

Resources Available Through the Chordoma Foundation Official Site

The Chordoma Foundation official site has lots of resources for patients, caregivers, and researchers. You can find educational materials that explain chordoma, its symptoms, and how to treat it. There’s also a section for the newest research, which is great for those who want to know the latest in chordoma treatment.

For those who want to share their stories, the Chordoma online resources are perfect. These stories help with emotional support and create a strong bond among chordoma patients. The site also has ways for you to donate online, helping with research and helping patients.

Here’s a list of the main resources you can find on the Chordoma Foundation site:

Resource Category Description
Educational Literature In-depth guides and articles that cover chordoma diagnosis, treatment, and management strategies.
Research Findings The latest studies and scientific breakthroughs in chordoma research, accessible to both laypersons and professionals.
Community Stories Personal narratives from patients, survivors, and caregivers, helping to build a supportive community.
Online Donations Secure channels for making donations to support research and patient services.

The Chordoma Foundation official site is a key place for info, connection, or ways to help. By checking out these Chordoma online resources, you can learn a lot and find ways to join the fight against chordoma.

How to Join a Chordoma Foundation Support Group

Chordoma Foundation Location in the US Joining a Chordoma Foundation support group gives you important support. It helps people with this rare disease feel less alone. You can connect with others online or in person, making it easy for everyone.

Online Support Options

The Chordoma Foundation has many online support groups. They meet different needs and likes. You can join from anywhere and get many benefits:

  • Peer Support: Connect with others who understand your journey.
  • Expert Guidance: Receive advice from healthcare professionals.
  • Resource Sharing: Access educational materials and resources online.

It’s easy to join a chordoma online support group. Just go to the Chordoma Foundation’s website, make an account, and pick a group that fits you. These groups are safe and supportive, thanks to moderators.

In-Person Support Groups

If you like talking face-to-face, the Chordoma Foundation has groups for that too. Being in an in-person group lets you make real connections. You get to feel part of a community and get support directly.

  • Personal Interaction: Build strong, personal connections.
  • Localized Support: Access resources and information specific to your region.
  • Community Activities: Participate in group events and activities.

To find a group near you, look at the foundation’s event calendar or call their support services. You’ll see a list of groups, their meeting times, and what support they offer. This way, you can pick the best group for you.

Impact of the Chordoma Foundation on Local Communities

The Chordoma Foundation has made a big difference in local communities. It works hard to help and speak up for those with chordoma. It has started many outreach programs to spread the word and give out important help.

These programs include workshops, support groups, and fundraising events. They help people understand more and get involved. This makes the community stronger.

People and families with chordoma find comfort and support from the Foundation. They share stories of how the Foundation has helped them. For example, in Seattle, local events made a network that gave patients and caregivers the help and hope they needed.

The Foundation creates strong bonds and offers important support services. This has made life better for many families. Reports show how families get to learn about new research, talk to experts, and find a strong support system.Chordoma Foundation Location in the US | Support & Info

Thanks to the Foundation, no one with chordoma has to go through it alone. It keeps growing and helping more people, making a big difference in local communities.

Chordoma Foundation Location in the US :FAQ

Where is the Chordoma Foundation located in the US?

The Chordoma Foundation is in Durham, North Carolina. They also have chapters in many states. This gives people local support and resources.

What is the mission of the Chordoma Foundation?

The mission is to help chordoma patients. They aim to find better treatments and a cure. They also support patients and their families.

How can I find a Chordoma Foundation chapter near me?

Visit the Chordoma Foundation Chapter Listings page on their website. You'll find a list of chapters by state and how to contact them.


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