Safe Exercises for Ehlers-Danlos Syndrome (EDS)

Safe Exercises for Ehlers-Danlos Syndrome (EDS). If you have been diagnosed with Ehlers-Danlos Syndrome (EDS), you know that managing this condition requires a comprehensive approach. In addition to medical interventions, incorporating safe and effective exercises into your routine can be immensely beneficial. Acibadem Healthcare Group, a leading healthcare provider, understands the unique needs of individuals with EDS and has developed an EDS exercise routine in collaboration with experts in the field.Safe Exercises for Ehlers-Danlos Syndrome

Understanding Ehlers-Danlos Syndrome (EDS)

Ehlers-Danlos Syndrome (EDS) is a group of genetic connective tissue disorders that affect the body’s collagen production. Collagen is a protein that provides strength and elasticity to the skin, joints, and other tissues. Individuals with EDS often experience symptoms such as joint hypermobility, skin fragility, and chronic pain.

Managing EDS symptoms through exercise is an essential aspect of treatment. Exercise can help strengthen muscles, stabilize joints, improve balance, and reduce pain. It can also enhance overall fitness and quality of life for individuals with EDS.


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To assist individuals with EDS in their fitness journey, an EDS fitness program has been developed. This program incorporates exercises tailored specifically to address the challenges and needs of those with EDS. By following this program, individuals can effectively manage their symptoms and improve their overall well-being.Safe Exercises for Ehlers-Danlos Syndrome

The Challenges of EDS

EDS poses unique challenges for those living with the condition. The excessive joint flexibility can lead to joint instability, which may cause pain, dislocations, or subluxations. Skin hyperextensibility and fragility make individuals with EDS more prone to bruises, cuts, and slow wound healing.Safe Exercises for Ehlers-Danlos Syndrome

Other symptoms of EDS include chronic fatigue, digestive issues, cardiovascular problems, and musculoskeletal abnormalities. The complex nature of EDS requires a holistic approach to treatment, incorporating various strategies such as exercise, physical therapy, and medical management.


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Managing EDS Symptoms Through Exercise

Exercise plays a crucial role in managing EDS symptoms. It can help strengthen the muscles around the joints, providing additional support and stability. This, in turn, can help reduce the risk of joint dislocations or subluxations.

Regular exercise also improves cardiovascular fitness, which is important for individuals with EDS. Strengthening the cardiovascular system can enhance overall endurance and energy levels, reducing the impact of chronic fatigue often associated with EDS.

Furthermore, exercise can have a positive impact on mental well-being. It can help reduce stress, anxiety, and depression, which are often experienced by individuals with chronic conditions like EDS. Engaging in physical activity releases endorphins, which are known as “feel-good” hormones.

Benefits of Exercise for EDS EDS Fitness Program
  • Increased joint stability
  • Improved muscle strength and tone
  • Better cardiovascular fitness
  • Reduced pain and inflammation
  • Enhanced mental well-being
  • Joint-strengthening exercises
  • Low-impact aerobic activities
  • Flexibility and stretching exercises
  • Balance and coordination training
  • Gradual progression and modifications

Importance of Exercise for EDS

Regular exercise plays a crucial role in managing Ehlers-Danlos Syndrome (EDS) and improving the overall quality of life for individuals with this condition. By incorporating joint-strengthening exercises and physical therapy into their routines, individuals with EDS can experience significant benefits in terms of joint stability, mobility, and pain management.

Strengthening Joints and Improving Mobility

Joints affected by EDS are often hyperflexible and prone to subluxations and dislocations. However, with the right exercises focused on joint stability and strength, individuals with EDS can effectively manage these difficulties. Joint-strengthening exercises, such as resistance training and low-impact activities like swimming or cycling, can help build muscle strength and stability around the joints, reducing the risk of injuries. These exercises target the muscles surrounding the joints, providing support and improving overall joint function.

In addition to joint-strengthening exercises, physical therapy also plays a vital role in improving mobility for individuals with EDS. Through targeted exercises and stretches, physical therapists can help EDS patients improve their range of motion, flexibility, and coordination. Physical therapy sessions are tailored to the individual’s unique needs, taking into account their specific joint hypermobility or stability issues.

The Role of Physical Therapy in EDS Management

Physical therapy is an essential component of managing Ehlers-Danlos Syndrome. Physical therapists, specialized in EDS and its related complications, work closely with patients to develop personalized exercise programs that focus on strengthening the affected joints, improving muscle tone, and optimizing overall function. They also educate individuals with EDS on proper body mechanics, posture, and movement patterns to prevent unnecessary strain on the joints.

Through regular physical therapy sessions, individuals with EDS can learn exercises and techniques specifically designed to address their unique needs. These exercises aim to promote joint stability, enhance proprioception (awareness of one’s body in space), and improve overall functional abilities. Physical therapy can serve as a valuable adjunct to other treatment approaches, helping individuals with EDS integrate exercise safely and effectively into their daily lives.

Guidelines for Exercising with EDS

Exercising with Ehlers-Danlos Syndrome (EDS) can be challenging, but it’s important to stay active to manage symptoms and improve overall well-being. Here are some guidelines to help you exercise safely and effectively:

  1. Start Slowly: Begin with low-impact activities and gradually increase intensity over time. This allows your body to adapt and reduces the risk of injury.
  2. Listen to Your Body: Pay attention to any pain or discomfort during exercise. If something doesn’t feel right, modify the activity or take a break. Your body is unique, so it’s important to honor its limits.
  3. Work with a Qualified Healthcare Professional: Consult with a healthcare professional, such as a physical therapist or exercise physiologist, who has experience working with individuals with EDS. They can assess your specific needs and develop an EDS workout plan tailored to your abilities.
  4. Incorporate Strength Training: Include joint-strengthening exercises in your routine to improve stability and reduce the risk of joint dislocations or subluxations.
  5. Focus on Low-Impact Cardiovascular Exercises: Choose activities like swimming, cycling, or using an elliptical machine that put minimal stress on your joints.
  6. Practice Mindful Stretching: Engage in gentle stretching exercises that improve flexibility without overstretching your joints.
  7. Take Rest Days: Allow adequate time for rest and recovery between workouts. EDS individuals may need more rest days than others due to fatigue or pain.
  8. Stay Hydrated: Drink plenty of water before, during, and after exercise to maintain optimal hydration levels.
  9. Use Assistive Devices: Depending on your needs, consider using braces, supports, or assistive devices to provide extra stability and support during exercise.

Remember, everyone’s journey is unique, and it’s crucial to work with your healthcare professional to develop an EDS workout plan that suits your individual needs. By following these guidelines and staying consistent, you can effectively manage your EDS symptoms through exercise and improve your overall quality of life.

Exercise Guidelines for EDS Recommendations
Start Slowly Begin with low-impact activities and gradually increase intensity.
Listen to Your Body Pay attention to any pain or discomfort and modify exercises accordingly.
Work with a Qualified Professional Consult with a healthcare professional experienced in EDS to develop a tailored workout plan.
Incorporate Strength Training Include joint-strengthening exercises to improve stability and reduce risks.
Focus on Low-Impact Cardiovascular Exercises Choose activities that minimize stress on the joints, such as swimming or cycling.
Practice Mindful Stretching Engage in gentle stretching exercises to improve flexibility without overstretching.
Take Rest Days Allow adequate time for rest and recovery between workouts.
Stay Hydrated Drink plenty of water to maintain optimal hydration levels.
Use Assistive Devices Consider braces or supports for extra stability during exercise.

Joint-Strengthening Exercises for EDS

Individuals with Ehlers-Danlos Syndrome (EDS) can benefit from incorporating joint-strengthening exercises into their fitness routine. These exercises help improve stability, reduce pain, and enhance overall joint function. It’s crucial to perform these exercises with proper form and technique to minimize the risk of injury.

Below, we have outlined a selection of joint-strengthening exercises specifically designed for individuals with EDS. Remember to start slowly and gradually increase the intensity and duration of the exercises as you build strength and confidence.

Aquatic Exercises

Water-based exercises can be highly beneficial for individuals with EDS due to the buoyancy of water, which reduces stress on the joints. Consider incorporating the following aquatic exercises into your routine:

  1. Aquatic walking or jogging: Walk or jog in the shallow end of a pool, focusing on maintaining proper form and engaging your core.
  2. Aquatic lunges: Step forward into a lunge position, keeping your front knee aligned with your ankle. Push through your heel to return to the starting position, alternating legs.
  3. Water aerobics: Participate in a water aerobics class specifically tailored to individuals with EDS. These classes often include exercises that target the entire body, promoting joint strength and stability.

Resistance Band Exercises

Resistance bands are a versatile and affordable tool for strengthening muscles and improving joint stability. Consider adding the following resistance band exercises to your routine:

  • Band shoulder press: Secure the band under your feet and hold the other end in each hand. Start with your hands at shoulder height, palms facing forward. Press the bands overhead, extending your arms fully without locking the elbows. Return to the starting position and repeat.
  • Band leg extensions: Sit on the edge of a chair with the resistance band looped around your ankles. Extend one leg straight in front of you while keeping the other foot on the ground. Slowly return to the starting position and repeat on the other side.
  • Band lateral walks: Place the resistance band around your lower thighs. Stand with your feet hip-width apart and step to the side, keeping tension in the band. Take several steps in one direction before returning to the starting position and repeating in the opposite direction.Safe Exercises for Ehlers-Danlos Syndrome

Isometric Exercises

Isometric exercises involve contracting and holding specific muscles without any joint movement. These exercises can help improve muscle strength and stability. Consider incorporating the following isometric exercises into your routine:

  1. Wall sit: Stand with your back against a wall and slide down until your knees are bent at a 90-degree angle. Hold this position for a set amount of time, gradually increasing the duration as you become stronger.
  2. Plank: Start in a push-up position, resting on your forearms instead of your hands. Engage your core and hold this position for as long as possible. Remember to maintain proper alignment from head to toe.
  3. Static squats: Stand with your feet shoulder-width apart and lower yourself into a squat position. Hold the squat for a set amount of time, focusing on engaging your glutes and keeping your knees aligned with your toes.Safe Exercises for Ehlers-Danlos Syndrome

Joint-Strengthening Table

Joint Exercise Repetitions Sets
Knees mini-squats 10-15 3
Hips hip bridges 10-15 3
Shoulders shoulder presses with dumbbells 8-12 3
Wrists wrist curls with resistance band 12-15 3
Ankles calf raises 12-15 3

Remember, it’s essential to consult with a healthcare professional or physical therapist familiar with EDS before starting any new exercise program. They can provide guidance and tailor a workout plan to address your specific needs and limitations. Consistency, proper form, and gradual progression are key to effectively strengthen your joints and manage your EDS symptoms.Safe Exercises for Ehlers-Danlos Syndrome

Mobility Exercises for Ehlers-Danlos Syndrome

Individuals with Ehlers-Danlos Syndrome (EDS) often experience joint hypermobility and reduced muscle strength, leading to mobility challenges. However, incorporating mobility exercises into your daily routine can greatly improve flexibility, range of motion, and overall joint function. These exercises can be performed at home or under the guidance of a healthcare professional specializing in EDS. Here, we present a variety of effective mobility exercises specifically designed for managing EDS symptoms through exercise.

Gentle Stretching

Start with gentle stretching exercises to gradually warm up your muscles and joints. These exercises should be performed slowly and without causing any pain or discomfort. Focus on stretching the major muscle groups, such as the shoulders, hips, and legs. Hold each stretch for 20-30 seconds and repeat 2-3 times.Safe Exercises for Ehlers-Danlos Syndrome

Joint Mobilization

Joint mobilization exercises help improve the mobility and range of motion of specific joints affected by EDS. These exercises are generally performed in a controlled and slow manner, avoiding jerky or forceful movements. A qualified healthcare professional can guide you in performing these exercises safely and effectively.

Resistance Band Exercises

Resistance band exercises can be beneficial for individuals with EDS as they provide controlled resistance and help strengthen muscles without putting excessive stress on the joints. Incorporate exercises that target different muscle groups, such as the upper and lower body. Remember to start with low resistance bands and gradually increase intensity as your strength improves.

Pilates and Yoga

Pilates and yoga are low-impact exercises that focus on strength, flexibility, and body awareness. These practices can help improve core stability, posture, and balance, which are important for individuals with EDS. Look for modified or gentle versions of these exercises that are specifically designed for people with hypermobility.Safe Exercises for Ehlers-Danlos Syndrome

Water Exercises

Exercising in water provides buoyancy, which reduces the stress on your joints and allows for gentle movement. Water exercises, such as swimming or water aerobics, can help improve overall fitness, cardiovascular health, and joint mobility. If available, consider joining a water therapy program designed for individuals with EDS.

Remember, it’s essential to consult with a healthcare professional familiar with EDS before starting any exercise program. They can assess your individual needs and develop a tailored exercise plan that suits your specific condition and goals. By incorporating these mobility exercises into your routine, you can proactively manage EDS symptoms and improve your overall quality of life.

Stretching Exercises for Ehlers Danlos Syndrome

Ehlers-Danlos Syndrome (EDS) is a connective tissue disorder that can cause joint hypermobility and instability. Stretching exercises play a crucial role in managing EDS symptoms by improving flexibility and preventing injury. Here, we will explore a variety of stretching techniques and routines specifically designed for individuals with Ehlers-Danlos Syndrome.Safe Exercises for Ehlers-Danlos Syndrome

Benefits of Stretching for EDS

Stretching exercises help to increase the flexibility of muscles and tendons, which in turn supports joint stability. By regularly performing stretching exercises, individuals with EDS can improve their range of motion, reduce muscle tightness, and decrease the risk of dislocations and subluxations.

Important Considerations

When performing stretching exercises with EDS, it is essential to listen to your body and avoid pushing beyond your limits. Opt for gentle stretches that feel comfortable and never force a stretch. It is also important to work with a qualified healthcare professional, such as a physical therapist, to ensure that the exercises you perform are safe and suitable for your specific condition.

Stretching Techniques and Routines for EDS

1. Static Stretches: Hold a stretch for 15-30 seconds in a comfortable position without bouncing. Focus on stretches that target specific muscle groups and joints, such as calf stretches, hamstring stretches, and shoulder stretches.

2. Dynamic Stretches: These involve controlled movements that take a joint or muscle through its full range of motion. Examples include arm circles, leg swings, and neck rotations. Dynamic stretches are beneficial for warming up before exercise or physical activity.

3. PNF Stretching: Proprioceptive Neuromuscular Facilitation (PNF) is a stretching technique that involves a combination of stretching and contracting muscles. It is effective in increasing flexibility and is often performed with the assistance of a partner or therapist.Safe Exercises for Ehlers-Danlos Syndrome

Stretching Exercise Description Instructions
Calf Stretch Targets the calf muscles Stand facing a wall with one foot in front of the other. Lean forward, keeping your back leg straight. Hold for 15-30 seconds and repeat on the other side.
Hamstring Stretch Targets the muscles at the back of the thigh Sit on the edge of a chair and extend one leg straight out in front of you. Lean forward, reaching towards your toes. Hold for 15-30 seconds and repeat on the other leg.
Shoulder Stretch Targets the muscles in the shoulders and upper back Stand with your feet shoulder-width apart. Reach one arm across your chest, using the other arm to gently pull the stretching arm closer to your body. Hold for 15-30 seconds and repeat on the other side.

Remember to start slowly and gradually increase the intensity and duration of your stretching exercises over time. It is advisable to consult with a healthcare professional to ensure that the stretching routine you follow is customized to your individual needs and takes into account any specific limitations or recommendations for your condition.

EDS Exercise Routine

For individuals with Ehlers-Danlos Syndrome (EDS), it is crucial to incorporate a specialized exercise routine that addresses the unique needs and challenges posed by the condition. The EDS exercise routine focuses on joint-strengthening exercises, mobility exercises, and stretching techniques.

1. Joint-Strengthening Exercises

Joint-strengthening exercises play a vital role in managing EDS symptoms and improving joint stability. These exercises target the muscles surrounding the joints, providing support and reducing the risk of injury. Incorporating a variety of resistance training exercises can help strengthen the muscles and stabilize joints.

Here are some examples of joint-strengthening exercises for individuals with EDS:

  1. Single-leg hip bridges
  2. External rotation exercises for the shoulders
  3. Quad sets and hamstring curls
  4. Seated calf raises

Performing these exercises with proper form and technique is essential to maximize their benefits. It is recommended to consult with a qualified healthcare professional or a physical therapist familiar with EDS to ensure safety and effectiveness.

2. Mobility Exercises

EDS can lead to reduced flexibility and joint mobility. Mobility exercises specifically target improving range of motion and flexibility, promoting better joint function and overall movement. These exercises can help alleviate stiffness and increase joint stability.

Here are some examples of mobility exercises suitable for individuals with EDS:

  • Neck rotations and gentle stretches
  • Wrist and ankle circles
  • Thoracic spine rotations
  • Standing hip circles

Engaging in these exercises regularly can gradually improve mobility and reduce discomfort associated with EDS. Remember to start slowly and perform the exercises within a pain-free range.

3. Stretching Techniques

Stretching exercises are important for maintaining muscle flexibility and preventing muscle imbalances in individuals with EDS. These exercises improve muscle elasticity and promote overall joint health.

Here are some examples of stretching techniques for individuals with EDS:

  1. Static stretches for major muscle groups
  2. Gentle yoga poses focusing on flexibility
  3. PNF (proprioceptive neuromuscular facilitation) stretching
  4. Foam rolling exercises for muscle release

Remember to warm up before performing stretching exercises and never push beyond your comfortable range of motion. Consult with a healthcare professional or a certified stretching coach for guidance on proper technique.

Sample EDS Exercise Routine

The table below presents a sample EDS exercise routine incorporating joint-strengthening exercises, mobility exercises, and stretching techniques:

Exercise Sets Repetitions
Single-leg hip bridges 3 10-12
External rotation exercises for the shoulders 3 10-12
Quad sets and hamstring curls 3 10-12
Seated calf raises 3 10-12
Neck rotations and gentle stretches 2 10-12
Wrist and ankle circles 2 10-12
Thoracic spine rotations 2 10-12
Standing hip circles 2 10-12
Static stretches for major muscle groups Hold for 30 seconds
Gentle yoga poses focusing on flexibility Hold for 30 seconds
PNF stretching Hold for 30 seconds
Foam rolling exercises for muscle release Roll for 1-2 minutes per muscle group

Remember to consult with a healthcare professional before starting any exercise routine, especially if you have EDS. They can guide you in tailoring the routine to your specific needs and monitor your progress.

Working with a Healthcare Professional

When it comes to exercising with Ehlers-Danlos Syndrome (EDS), working with a qualified healthcare professional is crucial. Their expertise in physical therapy for EDS can help you develop a safe and effective workout plan tailored to your unique needs.

A physical therapist experienced in treating individuals with EDS understands the complexities of the condition and can guide you through exercises that promote joint stability, improve mobility, and manage EDS symptoms.

Here are some tips to help you find the right healthcare professional:

  • Search for a physical therapist with specific experience in EDS or hypermobility disorders.
  • Ask for recommendations from your primary care physician or other healthcare providers.
  • Look for physical therapy clinics that specialize in treating EDS or related conditions.
  • Read reviews and testimonials from other EDS patients to gauge their experiences.

How a Healthcare Professional Can Help

When you work with a healthcare professional, they will assess your individual needs and EDS symptoms to create a personalized workout plan. This plan may include:

  • Joint-strengthening exercises that focus on building stability and preventing subluxations or dislocations.
  • Stretching and flexibility exercises to enhance range of motion and alleviate muscle tightness.
  • Cardiovascular exercises that improve overall fitness and endurance.
  • Guidance on proper form and technique to prevent injury during exercise.

Your healthcare professional will also monitor your progress and make adjustments to your workout plan as needed. They will ensure you are engaging in exercises that are safe and effective for your EDS condition.

By partnering with a healthcare professional, you can feel confident that you are taking the right steps towards managing your EDS symptoms through exercise.

Benefits of Working with a Healthcare Professional Drawbacks of Exercising without Professional Guidance
  • Expert guidance and supervision during exercise sessions
  • Individualized exercise plan tailored to your unique needs
  • Education on proper form and technique to prevent injury
  • Monitoring of progress and adjustment of exercises as needed
  • Increased risk of injury due to improper exercise technique
  • Difficulty in determining appropriate exercises for your specific EDS subtype
  • Lack of progress monitoring and adjustments to your workout routine
  • Uncertainty about which exercises are safe and effective for EDS

Working with a healthcare professional specializing in EDS can provide you with the guidance and support you need to exercise safely and effectively. They will ensure that your EDS workout plan is tailored to your specific needs and assist you in achieving your fitness goals while managing your EDS symptoms.

Tracking Progress and Adapting Exercises

As you embark on your journey to manage EDS symptoms through exercise, it is essential to monitor your progress and adapt your workout routine accordingly. Tracking your progress allows you to evaluate the effectiveness of your fitness goals and make necessary adjustments as you navigate the challenges of Ehlers-Danlos Syndrome. Additionally, adapting exercises based on changes in your symptoms ensures that you continue to engage in a safe and beneficial fitness program.

Monitoring and Evaluating Progress

One effective way to track your progress is to maintain a detailed exercise journal. In this journal, record the exercises you perform, the number of repetitions or sets, and any modifications made to accommodate your EDS symptoms. Keeping a record of your workouts allows you to see how far you’ve come and identify areas of improvement. It also enables healthcare professionals or trainers to provide personalized guidance and make informed recommendations.

Assessing your fitness goals

Regularly reassessing your fitness goals is crucial in managing EDS symptoms through exercise. As your body adapts to your exercise routine, it’s important to set new goals that challenge and progress your abilities. Consider working with a healthcare professional, such as a physical therapist, to help establish realistic goals tailored to your individual needs and limitations.

Adapting Exercises for EDS Symptoms

EDS symptoms can vary from person to person and fluctuate over time. Therefore, it’s vital to adapt your exercises as your symptoms change to prevent injury and ensure ongoing progress. If you experience increased joint pain or instability, modifying your routine to focus on low-impact exercises can help alleviate symptoms while still maintaining an effective fitness program. Work closely with your healthcare professional to make necessary modifications and explore alternative exercises that target specific areas of concern.

Seeking Professional Guidance

When it comes to tracking progress and adapting exercises, it is always beneficial to seek guidance from a qualified healthcare professional. They can provide personalized support and expertise to ensure you are continuously engaging in a safe and effective EDS fitness program. Collaborate with professionals who specialize in managing EDS symptoms through exercise, like those at Acibadem Healthcare Group, who can offer comprehensive assessments, personalized exercise plans, and ongoing guidance throughout your fitness journey.

Benefits of Tracking Progress and Adapting Exercises
Allows evaluation of the effectiveness of fitness goals
Identifies areas of improvement and progress
Enables personalized guidance from healthcare professionals
Prevents injury and ensures ongoing progress
Provides an opportunity to modify exercises based on changing symptoms

Conclusion

Throughout this article, we have explored the importance of exercise for individuals with Ehlers-Danlos Syndrome (EDS) and provided valuable insights into safe and effective workout routines. Regular exercise can play a crucial role in managing EDS symptoms and improving overall quality of life.

By incorporating joint-strengthening exercises, mobility exercises, and stretching techniques into your fitness routine, you can enhance joint stability, increase flexibility, and reduce the risk of injury. However, it is important to note that every individual with EDS is unique, and what works for one person may not work for another.

That is why we strongly recommend seeking guidance from healthcare professionals who specialize in EDS, such as the experts at Acibadem Healthcare Group. Their knowledge and experience can help you develop a personalized exercise plan that takes into account your specific needs and abilities. Remember, it’s crucial to start slowly, listen to your body, and gradually increase the intensity and duration of your workouts.

By prioritizing your health and working closely with professionals, you can achieve great results and improve your overall well-being.

FAQ

What types of exercises are safe for individuals with EDS?

Low-impact exercises such as swimming, cycling, and yoga are generally safe for individuals with EDS. However, it is important to consult with a healthcare professional to determine the best exercise routine based on individual needs and limitations.

Why is exercise important for individuals with EDS?

Exercise is essential for individuals with EDS as it helps strengthen the joints, improve mobility, and manage symptoms. It can also enhance overall physical and mental well-being.

What is Ehlers-Danlos Syndrome (EDS)?

Ehlers-Danlos Syndrome (EDS) is a group of genetic disorders that affect the connective tissues of the body. It is characterized by hypermobility of the joints, stretchy skin, and fragile blood vessels.


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